Tuesday, May 24, 2011


I received a phone call last Thursday from Boy One's teacher.

Apparently, he had a petit mal seizure during library.

Nobody really noticed until he was supposed to stand up and choose a book before going back to class and he couldn't stand up without help from his friends.  Then, instead of choosing a book, he kind of stood around with a blank stare.  Eventually, the other kids were sent back to class and his assistant helped him choose a book and walked him back, where he was relatively normal for the rest of the day.

I talked with his teacher, and then with him about the event and was relieved to know exactly what they were talking about -- I've experienced enough of them myself to know how to describe them.  The school was relieved that they didn't need to worry too much about handling them.  Boy One was relieved that Mama knows all about these incidents that are happening to him, could describe them when he couldn't, and that he doesn't have to be scared because Mama has them and there's nothing to be scared about.

I just want to cry.

With his autism, he isn't able to communicate anything about these seizures, either during or afterwards.  And its almost impossible to tell the difference between when he's having a seizure (and seems detached, giving you blank stares and seeming not to hear you) and when he's just having another autistic memory/communication lapse.

The shining light at the end of the tunnel is that the diet that should lighten his autism should also help to lighten his seizures, and he seems terribly excited that he and Mama have special foods were going to eat this summer that will help our brains not to get fuzzy anymore.  He's been telling other people about it like it's a fantastic secret pact that we have. 

I really didn't want to pass this on the my kids.  They have enough issues to deal with.

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